Population biobanks and returning individual research results: mission impossible or new directions?
نویسندگان
چکیده
منابع مشابه
Returning a Research Participant's Genomic Results to Relatives: Perspectives from Managers of Two Distinct Research Biobanks.
Research biobanks are heterogeneous and exist to manage diverse biosample types with the goal of facilitating and serving biomedical discovery. The perspectives of biobank managers are reviewed, and the perspectives of two biobank directors, one with experience in institutional biobanks and the other with national cooperative group banks, are presented. Most research biobanks are not designed, ...
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A pressing issue for the genetic research enterprise—and an issue that has important implications for biobanks—is whether researchers should share, or “return,” the genetic research results with the individuals whose DNA they studied.1 With some exceptions, researchers typically have not returned genetic research results to the biospecimen donors.2 One reason for a no-return policy is that rese...
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ژورنال
عنوان ژورنال: Human Genetics
سال: 2011
ISSN: 0340-6717,1432-1203
DOI: 10.1007/s00439-011-1021-x